Thursday, November 5, 2009

Update

Have now been on the Amitriptyline med for 3 weeks and even though it has helped me sleep better, it is not helping my headaches.

Paracetamol doesn't do anything for the headaches, so decided to try Panadeine the other day and that didn't help to relieve the headaches either, won't even take the edge of them. So I guess I will have to try Panadeine Forte and go and see my GP again to discuss some other kind of long term headache relief. Can't be on Panadeine or Panadeine Forte forever, it's just not good for you!

Dizziness is still there but not as frequent. Hoping it will fully subside very soon.

Sunday, November 1, 2009

International Brain Tumor Awareness Week

From today the 1st November to 7th November is International Brain Tumor Awareness Week.

Brain tumors are so devastating to people who are diagnosed with them, as they attack the brain...the essence of a person, they can effect mobility, cognition, personality and speech to name just a few things and also often determine your life expectancy.

The week is to create more awareness and in turn hopefully more funding and donations towards research into treating these awful things and hoping one day they will find a cure!

Thursday, October 15, 2009

MRI and Neurosurgeon Appointment

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Had my MRI on Tuesday and today I had my follow up appointment with Neurosurgeon to discuss the results.

All is fine with the scan with no evidence of tumor recurrence, which is great to hear!

Due to my headaches and trouble sleeping he has decided to prescribe a med to hopefully help with this. It's Amitriptyline which is also an anti-depressant but apparently it is also used for pain management and sleep issues, if this doesn't help he would be keen to start me on Epilim instead.

Dizziness and nausea I guess I will just have to keep putting up with and hope it subsides soon.

Next MRI and review with Neurosurgeon in April.

Tuesday, October 6, 2009

6 months since diagnosis and 1st NOgIN Meeting

Today marks 6 months since being diagnosed.

Tonight I attended my first Nogin meeting for Brain Tumor Patients at Westmead Private Hospital from 7-9pm.

Tonight's subjects covered managing changes in cognition and quality of life and making choices.

It was so nice to meet other brain tumor patients in person.

I am looking forward to the next information session in December...

Thursday, October 1, 2009

Faux Hawk?

As my hair has been slowly growing back from my op, it is now at the point I look like I'm trying to sport a try-hard faux hawk!?





Thursday, September 17, 2009

It's Just Benign!

As the title suggests, since being told the news that my tumor was benign, it's weird how alot of people assume because it was benign life just carries on with no further monitoring, appointments and side effects from the tumor itself or the surgery.

I think that even though we are lucky our tumors were benign some people forget that benign brain tumors can kill and some may even recur. Even though recurrence is less likely than in malignant tumors, the worry still does not go away of "what if mine comes back?"

Even though many tumors can be the same in name, they can be so very different in behaviour depending on the grade of tumor.

Anything growing in the brain is not good. It is a confined space within the skull and it cannot expand to accommodate a growing tumor. Therefore as they grow even benign brain tumors have the potential to become life threatening due to pressure on the brain. Then there are some benign tumors that can not be removed due to there location and the deficits it would cause being removed.

Regardless of tumors being benign or malignant, patients will need lifelong monitoring.

During my research for support and knowledge of brain tumors, I came across a very applicably named website "It's Just Benign" - Connecting benign brain tumor survivors everywhere. So, there's obviously alot of other people that deal with this comment aswell.

Monday, September 14, 2009

GP Appointment

Decided to call my Neuro on Thursday about my symptoms. He suggested to get some blood tests to make sure all was okay and rule out that side of things first. On Friday had my blood tests and received the results today and everything was fine.

So still not sure why I still feel like this, I am hoping with some time I will start to feel alot healthier.

GP was keen to get MRI earlier than 13th October, but I figured it's now only 4 weeks tomorrow until the scan anyway, so unless the symptoms get worse between now and then, I will leave it for that date.
 
Header Image from Bangbouh @ Flickr